Post by crystalriver on Oct 2, 2009 16:48:10 GMT -5
Dear RM Agents and Readers,
My take on the information that is to come forward is similar to the statement by Rhorn, "Has "psychology" suddenly become an actual "fact based medical science"?"
It reminds me of the "Manchurian Candidate" in which the character Ben Marco is pushed in an interview--(more like an interrogation)repeatedly by another person until he punches him and than is required to be on medication--what of the other persons responsibility in this situation?
Scientists create a nightmare that is than placed upon the human race--those that speak of it are termed "mentally incompetent"--has happened with AIDS, Gulf War Syndrome and now Morgellons--and people buy into it--even against their own families; how heartbreaking this is for so many.
Please be kind to those you love and more forgiving than ever,
Many Blessings,
CrystalRiver
PS. Don't hold your breath, the CDC information may come, it may not and if it does, it most likely will be a very compromised truth.
---------------
Unexplained Dermopathy (also called "Morgellons")Unexplained DermopathyGeneral Information
CDC Investigation
More Related Links
National Center for Zoonotic, Vector-Borne, and Enteric Diseases
CDC Investigation
Also Available in:
CDC Investigation on Unexplained Dermopathy [PDF, 132 KB]Given the complexity and number of diverse symptoms reported by people who experience this unexplained skin condition, CDC is undertaking a measured and thorough scientific investigation which offers the best chance for finding useful answers. CDC is conducting this study along with Kaiser Permanente’s Northern California Division of Research. The study was designed and is being led by CDC.
The primary goals of the study are to learn more about who may be affected with this condition, the symptoms they are having, and what factors may contribute to the condition. The study involves: Determining the clinical and epidemiologic features of this condition; examining skin biopsies from affected patients; characterizing foreign material such as fibers or threads obtained from persons with the condition; and estimating rates of illness among the study population.
Frequently Asked Questions
What is the current status of the study?
How will CDC communicate information about this condition and the findings from the study?
Does CDC plan to expand the study to other locations or include other persons who may be affected with this condition?
Why did CDC select Kaiser Permanente as the partner for the study?
Who was eligible to participate in the study?
May I send samples to the CDC laboratories for confirmation of this condition?
Can you advise on the steps that I should take to report this condition to CDC?
If I have more questions about the study, what should I do? What is the current status of the study?
Study recruitment, examination of participants, and collection of samples has been completed. We are currently analyzing the data collected.
How will CDC communicate information about this condition and the findings from the study?
On September 24, 2009, CDC convened an external review panel made up of experts from the fields of dermatology, infectious diseases, public health, and mental health which examined the study activities to date and provided advice on future activities. The panel provided recommendations and guidance to CDC about analyses they think should be conducted on the data. A summary of the findings of the peer review panel will be presented to CDC’s CCID Board of Scientific Counselors in November 2009 and will be made available on this website.
In addition, results of this study will most likely be published in a peer-reviewed scientific journal and disseminated through other channels, to CDC’s public health partners, such as State and local health departments and medical societies, and through this website.
In December 2008, CDC mailed letters to state medical associations, in case they and their members received inquiries about this condition, in order to provide an update about CDC’s activities. Letter from CDC to medical association [PDF, 45 KB] We will provide an update to these organizations as well, when the study results are available.
Why did CDC select Kaiser Permanente Northern California as the partner for the study?
There are several factors that led CDC to select Kaiser Permanente Northern California as the partner in this study. First, this condition is thought to be rare; therefore, CDC sought a location and an organization that would likely have an adequate number of affected persons to be able to conduct a careful investigation. Kaiser Permanente Northern California is located in a geographic area where self-reported cases of this condition are concentrated. Second, Kaiser Permanente has a membership that comprises a large proportion of the population in the Northern California area, thereby allowing estimation of rates of the condition in the population. Third, Kaiser Permanente has electronic health records that allowed a systematic method of identifying persons who may have this condition.
Who was eligible to participate in the study?
Participant selection followed a set protocol, and not all persons who identified themselves as having signs or symptoms of this condition were eligible to participate in the study. Eligible participants were required to live in the Northern California area, were at least 13 years old, had been a health plan member of Kaiser Permanente Northern California from July 2006 through December 2007, and had compatible signs and symptoms of the condition as described in the study protocol.
May I send samples to the CDC laboratories for confirmation of this condition?
CDC is not able to accept specimens or samples for testing, and we are not aware of any public health labs that are performing tests specifically related to this condition. Persons who believe they may suffer from this condition should contact a licensed healthcare provider for evaluation and medical care.
Can you advise on the steps that I should take to report this condition?
"Morgellons" is not a condition that is reportable. Persons who believe they may suffer from this condition should contact a licensed healthcare provider for evaluation and medical care. CDC is not a clinical facility and does not provide clinical care or consultation to patients.
Does CDC plan to expand the study to other locations or include other persons who may be affected with this condition?
The current study was limited to persons living in Northern California and to persons who met the study's eligibility criteria. Decisions regarding future studies will be determined based on the findings of this study and on recommendations from the peer review panel.
If I have more questions about the study, what should I do?
Inquiries regarding this study can be sent to:
Email: morgellonssyndrome@cdc.gov or
Phone: 404-718-1199 (Pre-recorded message with voicemail)
At this time, we are not able to provide individual responses to each inquiry, but our public inquiry e-mail and phone line are checked regularly. Answers to frequently asked questions will be posted to this web site, and this web site will be updated with new information as it becomes available.
Above information brought forward by Bessie.
-------------------------------------------------------
November 2009??? That must have been a type-o...... I think they meant to say "November 2019"
I still don't understand what in the heck mental health professionals have to do with a fact based medical research study...
rhorn2006
--------------------------------------------------------
Discovered at: lymebusters.proboards.com/index.cgi?board=rash&action=display&thread=12970
---------------------------------------------------------------
Please God help us!!!
CR
My take on the information that is to come forward is similar to the statement by Rhorn, "Has "psychology" suddenly become an actual "fact based medical science"?"
It reminds me of the "Manchurian Candidate" in which the character Ben Marco is pushed in an interview--(more like an interrogation)repeatedly by another person until he punches him and than is required to be on medication--what of the other persons responsibility in this situation?
Scientists create a nightmare that is than placed upon the human race--those that speak of it are termed "mentally incompetent"--has happened with AIDS, Gulf War Syndrome and now Morgellons--and people buy into it--even against their own families; how heartbreaking this is for so many.
Please be kind to those you love and more forgiving than ever,
Many Blessings,
CrystalRiver
PS. Don't hold your breath, the CDC information may come, it may not and if it does, it most likely will be a very compromised truth.
---------------
Unexplained Dermopathy (also called "Morgellons")Unexplained DermopathyGeneral Information
CDC Investigation
More Related Links
National Center for Zoonotic, Vector-Borne, and Enteric Diseases
CDC Investigation
Also Available in:
CDC Investigation on Unexplained Dermopathy [PDF, 132 KB]Given the complexity and number of diverse symptoms reported by people who experience this unexplained skin condition, CDC is undertaking a measured and thorough scientific investigation which offers the best chance for finding useful answers. CDC is conducting this study along with Kaiser Permanente’s Northern California Division of Research. The study was designed and is being led by CDC.
The primary goals of the study are to learn more about who may be affected with this condition, the symptoms they are having, and what factors may contribute to the condition. The study involves: Determining the clinical and epidemiologic features of this condition; examining skin biopsies from affected patients; characterizing foreign material such as fibers or threads obtained from persons with the condition; and estimating rates of illness among the study population.
Frequently Asked Questions
What is the current status of the study?
How will CDC communicate information about this condition and the findings from the study?
Does CDC plan to expand the study to other locations or include other persons who may be affected with this condition?
Why did CDC select Kaiser Permanente as the partner for the study?
Who was eligible to participate in the study?
May I send samples to the CDC laboratories for confirmation of this condition?
Can you advise on the steps that I should take to report this condition to CDC?
If I have more questions about the study, what should I do? What is the current status of the study?
Study recruitment, examination of participants, and collection of samples has been completed. We are currently analyzing the data collected.
How will CDC communicate information about this condition and the findings from the study?
On September 24, 2009, CDC convened an external review panel made up of experts from the fields of dermatology, infectious diseases, public health, and mental health which examined the study activities to date and provided advice on future activities. The panel provided recommendations and guidance to CDC about analyses they think should be conducted on the data. A summary of the findings of the peer review panel will be presented to CDC’s CCID Board of Scientific Counselors in November 2009 and will be made available on this website.
In addition, results of this study will most likely be published in a peer-reviewed scientific journal and disseminated through other channels, to CDC’s public health partners, such as State and local health departments and medical societies, and through this website.
In December 2008, CDC mailed letters to state medical associations, in case they and their members received inquiries about this condition, in order to provide an update about CDC’s activities. Letter from CDC to medical association [PDF, 45 KB] We will provide an update to these organizations as well, when the study results are available.
Why did CDC select Kaiser Permanente Northern California as the partner for the study?
There are several factors that led CDC to select Kaiser Permanente Northern California as the partner in this study. First, this condition is thought to be rare; therefore, CDC sought a location and an organization that would likely have an adequate number of affected persons to be able to conduct a careful investigation. Kaiser Permanente Northern California is located in a geographic area where self-reported cases of this condition are concentrated. Second, Kaiser Permanente has a membership that comprises a large proportion of the population in the Northern California area, thereby allowing estimation of rates of the condition in the population. Third, Kaiser Permanente has electronic health records that allowed a systematic method of identifying persons who may have this condition.
Who was eligible to participate in the study?
Participant selection followed a set protocol, and not all persons who identified themselves as having signs or symptoms of this condition were eligible to participate in the study. Eligible participants were required to live in the Northern California area, were at least 13 years old, had been a health plan member of Kaiser Permanente Northern California from July 2006 through December 2007, and had compatible signs and symptoms of the condition as described in the study protocol.
May I send samples to the CDC laboratories for confirmation of this condition?
CDC is not able to accept specimens or samples for testing, and we are not aware of any public health labs that are performing tests specifically related to this condition. Persons who believe they may suffer from this condition should contact a licensed healthcare provider for evaluation and medical care.
Can you advise on the steps that I should take to report this condition?
"Morgellons" is not a condition that is reportable. Persons who believe they may suffer from this condition should contact a licensed healthcare provider for evaluation and medical care. CDC is not a clinical facility and does not provide clinical care or consultation to patients.
Does CDC plan to expand the study to other locations or include other persons who may be affected with this condition?
The current study was limited to persons living in Northern California and to persons who met the study's eligibility criteria. Decisions regarding future studies will be determined based on the findings of this study and on recommendations from the peer review panel.
If I have more questions about the study, what should I do?
Inquiries regarding this study can be sent to:
Email: morgellonssyndrome@cdc.gov or
Phone: 404-718-1199 (Pre-recorded message with voicemail)
At this time, we are not able to provide individual responses to each inquiry, but our public inquiry e-mail and phone line are checked regularly. Answers to frequently asked questions will be posted to this web site, and this web site will be updated with new information as it becomes available.
Above information brought forward by Bessie.
-------------------------------------------------------
November 2009??? That must have been a type-o...... I think they meant to say "November 2019"
I still don't understand what in the heck mental health professionals have to do with a fact based medical research study...
rhorn2006
--------------------------------------------------------
Discovered at: lymebusters.proboards.com/index.cgi?board=rash&action=display&thread=12970
---------------------------------------------------------------
Please God help us!!!
CR